In The News
Below are published media articles about affected families
with Canavan disease
Dayton Children's first in the world to trial new gene therapy for Canavan diseas
Canavan disease is an inherited, fatal, neurological disease, characterized by the spongy degeneration of the white matter in the brain, which begins in infancy and destroys a child’s vision, speech, and motor function. Currently, there is no cure for Canavan disease.
Parents Raise $1.1 Million to Save Baby Boys from Fatal Genetic Disease: 'You Would Do Anything for Your Kids'
Told that nothing could be done to save their sons from a fatal disorder, Jennie and Gary Landsman sought help from top scientists who are close to a cure
Couple Needs $1.2M to Save Sons, 4 and 3, from Disease:
'A Long Road Ahead But We're Hopeful'
A cure for Canavan is a gateway to treating other diseases such as Alzheimer's, Parkinson's Disease, ALS and Multiple Sclerosis
Couple Needs $560K to Give Sons, 4 and 3, Life-Saving Treatment: 'We Could Never Do This Alone'
PEOPLE readers have helped raise more than $200,000 to help the Landsmans pay for life-saving treatment for their boys and children worldwide who suffer from Canavan, says Jennie Landsman
Landsman Family Gets FDA Approval For Treatment for Benny and Josh
Congratulations! Our nearly 3.5-year journey to save Benny and Josh has crossed another milestone. Late last week we received a letter from the FDA stating, “You have satisfactorily addressed all clinical hold issues…[the FDA has] removed the clinical hold and you may proceed with your study.”
New gene therapy trial in US offers hope for children with Canavan disease
4-year-old Benny Landsman is first to receive experimental procedure for condition that causes blindness, paralysis, seizures, and average life expectancy of under a decade
This family raised millions to get experimental gene therapy for their children
Trillions of viruses were injected into the brain of Benny Landsman in a bid to treat a rare nerve disease.
Family raises millions for treatment of sons' rare and fatal neurological disorder
When Jennie and Gary Landsman learned that their sons, Benny and Josh, had Canavan disease, a rare genetic neurological disorder characterized by the degeneration of white matter in the brain, they were stunned to learn there was no treatment.
On the cusp of a cure for deadly childhood disease
Children with Canavan disease can’t speak, walk, or even hold their heads up — and their lives are cut short due to the disorder’s progression. Even so, effective treatment for the inherited neurodegenerative disease is within sight, thanks to the life’s work of Dr. Paola Leone, director of the Cell and Gene Therapy Center at Rowan University School of Osteopathic Medicine.