In The News
Below are published media articles about affected families
with Canavan disease
Dayton Children's first in the world to trial new gene therapy for Canavan diseas
Canavan disease is an inherited, fatal, neurological disease, characterized by the spongy degeneration of the white matter in the brain, which begins in infancy and destroys a child’s vision, speech, and motor function. Currently, there is no cure for Canavan disease.
Landsman Family Gets FDA Approval For Treatment for Benny and Josh
Congratulations! Our nearly 3.5-year journey to save Benny and Josh has crossed another milestone. Late last week we received a letter from the FDA stating, “You have satisfactorily addressed all clinical hold issues…[the FDA has] removed the clinical hold and you may proceed with your study.”
Family raises millions for treatment of sons' rare and fatal neurological disorder
When Jennie and Gary Landsman learned that their sons, Benny and Josh, had Canavan disease, a rare genetic neurological disorder characterized by the degeneration of white matter in the brain, they were stunned to learn there was no treatment.
On the cusp of a cure for deadly childhood disease
Children with Canavan disease can’t speak, walk, or even hold their heads up — and their lives are cut short due to the disorder’s progression. Even so, effective treatment for the inherited neurodegenerative disease is within sight, thanks to the life’s work of Dr. Paola Leone, director of the Cell and Gene Therapy Center at Rowan University School of Osteopathic Medicine.