Benny & Josh (May 2020 video - "The Last Mile")
Over the past two and a half years, we have been working to bring a promising gene therapy treatment out of the lab so that Benny and Josh can have a chance at life. We are just two parents and we wouldn't be here without you.
Your generous donations have funded over two years of research, production, and testing. And we're now in the final stretch, "The Last Mile". We are so close.
We're beyond grateful and wish we didn't have to ask again, but we need your help one more time. We need to raise approximately $1.2M more, $650K of which is due in 14 days, and the remaining $560K ($280K each, for Benny & Josh) due shortly thereafter to cover the neurosurgery and hospitalization costs.
Thank you for all you have helped us accomplish.
If you have ANY questions about the treatment, finances, or how you can help beyond your generous donation, please don't hesitate to reply to this email.
Jennie, Gary, Michael, Benny, Josh & Evan.
See below to learn more about the finances of this two-year journey.